NG

Saturday, April 24th at 3:15pm Rylan Lee went NG! So what the heck is NG you ask!

NG is short for nasogastric, which is the type of feeds Rylan is getting. In English, she has a feeding tube that is passed through her nose and travels all the way down to her belly. Before she was being fed past the stomach to reduce any reflux or food aspiration. We ruled out aspiration during a study they did, but we also confirmed she has reflux. No surprise there! So she is on some meds and so far, she is tolerating her feeds.

We also attempted to bottle feed her Monday evening. She drank about 4cc's, which is about 5 drops if that. 30cc's equals an ounce. We tried a regular nipple, but she chews and doesn't suck, so we tried a cross cut nipple (thanks for the idea Alycia W.!) and she got a little milk. She wasn't feeling to good, so it probably wasn't the best time to try. I am going to try and get a hold of lactation today and see if they can meet with Rylan and I and attempt breastfeeding.

Dakota is feeling much better! Thank goodness! She is back to visiting Rylan and being her silly self!

Caths and Colds

Rylan had her cath on Monday and good news, NO hypertension!!! She does have extra blood flow due to the PDA (hole in her heart), but the doctor just said she needs some more time to grow and it should close on its own.

Dakota has her first cold. She had a fever of 101 on Sunday evening, while we were at the hospital. She has had a cough since Saturday and just got really congested today. We went to CVS and bought her a humidifier. Hopefully that will help her.

We are still waiting on the waiver for our nursing care.

short update

Rylan's cath is scheduled for this Monday, still don't know a time, but hopefully we will know on Sunday more details. Rylan just hit the 10lb mark which is a big milestone! I can't believe how big she is getting. She is really doing so much more now. She is able to hold her head up better and when being pulled by her arms to sit, her head doesn't lag. She also wants to stand all the time. She is always smiling at us too.

Dakota got her Synagis shot on Wednesday and also got weighed. She weighs 11lbs 5oz! It is amazing how quickly they grow. Dakota will drink about 5oz every 4 hours and is sleeping through the night (bed at 8pm, wake at 4:30am, back to sleep til 7am). It is nice to get some sleep!