The Princesses

The Princesses

Thursday, August 12, 2010

VACTERL

Firstly, Rylan did not get her G-Tube due to her bowels covering her belly, so we need to meet with surgery so they can do the surgery in the OR.

Not sure who knows what, but Rylan has a syndrome called VACTERL. For a while I had a hard time believing this and more recently have started feeling comfortable talking to people about it. So hear goes.

VACTERL is an acronym for several anomalies. To be classified with VACTERL you need to have at least three of the characteristics.

Vertebral - Rylan has a few of her vertebrae fused as well as two of her ribs. This should cause her no issues in the long run.
Anus - Rylan has an imperforate anus. She has a loop colostomy in which she stools through. This will need corrective surgery. The surgery will consist of two or more procedures.
Cardiac - Rylan is dextrocardic and has an ASD and PDA. The ASD may or may not need surgery (we find out tomorrow)
Tracheoesophageal fistula - do not have
Esophageal atresia - do not have
Renal/Radial anomalies - do not have
Limb defects - do not have

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