I'm not sure where to start...so here's the biggest update....we had a baby!!!
We are now a family of 5! Kadyn was born 09/19/13. She's a few days shy of 10 months and busier than ever!! She is all over the place, into everything. She fits so perfect into our family though!
Rylan has been through a lot in 2 years. She was diagnosed with a laryngeal cleft, which has been revised. She also has stricture in her esophagus. GI has been working hard to open that in the OR with dilations. We were going every 2 weeks til December 2013, then took a break. They did not work at all. We went back to the OR June 2014 and it was open!! Doctors have no reasoning! Go figure!
She still has her trach. No idea when that will come out. She still has her gtube. She has been drinking by mouth, but not enough yet.
Rylan also started talking! She no longer uses PECS and still occasionally will sign things us. Once she got her tonsils and adenoids out (June 2013), she's been non stop!!
Dakota's growing into an awesome little girl. She is funny and smart. She loves her sisters so much and is a little mommy to both if them!
Of course so much more has happened over 2 years, but those were the biggest in our lives!
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